The documentary titled “Matter of Time” is set to make its debut this summer at the iconic Tribeca Film Festival, and it draws significant attention primarily due to its captivating focus on Eddie Vedder, the renowned frontman of the legendary rock band Pearl Jam. However, what makes this film especially compelling is its portrayal of personal and societal issues that go beyond the realm of a standard concert film. “Matter of Time” is being described as a clarion call for social action, aiming to engage not just music fans but also those passionate about medical research and advocacy.
Set against the backdrop of a series of solo concerts held in Seattle throughout 2023, the film chronicles Vedder’s heartfelt commitment to raising funds for Epidermolysis Bullosa (EB), a rare and debilitating genetic skin condition that primarily afflicts children. EB leads to severe skin blisters and erosion, significantly affecting patients’ quality of life. The documentary captures not just the performances but also the emotional journey of families affected by the condition, effectively highlighting the urgent need for research and clinical solutions.
A significant portion of the proceeds generated from the concerts featured in the film has been directed toward the EB Research Partnership (EBRP). This organization was co-founded by Eddie Vedder along with his wife, Jill Vedder, and a group of families touched by the impact of EB. Their collective mission is to expedite the search for a cure for EB, with an ambitious goal set for completion by the year 2030.
According to a press release from the filmmakers, “Matter of Time” expertly merges powerful musical moments with the poignant narratives of patients, their families, researchers, and thought leaders who are all championing the cause of finding a cure. This blend not only entertains but also informs the audience about the realities faced by those living with EB. Vedder himself expresses immense gratitude for the support received from the music community and the dedication of everyone involved in the filming. He describes the film as a narrative rich with themes of hope, resilience, and community empowerment in the face of adversity.
Jill Vedder, who plays a pivotal role as chairwoman of the EBRP, reflects on the progress that has been made, acknowledging that while Epidermolysis Bullosa is a rare condition, the tireless efforts of their community have brought their message to a wider audience. She emphasizes that their mission extends beyond mere awareness; it is a call to take urgent action to eliminate EB by 2030, urging collective action to make this vision a reality.
The couple’s personal connection to EB—stemming from a family friend whose son was born with the condition—unlocks the emotional depth evident in the film. “The concert wasn’t simply about enjoying music,” states Finlin, an involved party, “it aimed to elevate the voices of a resilient and vibrant community determined not to let their condition define them. This documentary stands testament to the belief that meaningful change is within reach if we work together.”
Founded in 2010, the EB Research Partnership has leveraged a unique venture philanthropy approach, aiming to foster sustainable funding for research into EB. Adopting principles from the investment world, the foundation has supported 160 different research projects and accelerated the initiation of clinical trials—now numbering over 50, which is a remarkable increase from just two trials at the organization’s inception.
Michael Hund, CEO of EBRP, underscores the significance of “Matter of Time,” asserting that the documentary illustrates the tangible scientific advancements occurring in real-time. He optimistically indicates that their model for addressing rare diseases has the potential to be replicated for thousands of other conditions, broadening the impact of their work.
Produced by Door Knocker Media in association with the Vitalogy Foundation, the documentary is set to premiere during the 24th Tribeca Festival on June 12th—a launch eagerly anticipated by both music enthusiasts and advocates for rare disease research alike. In summary, “Matter of Time” is not merely a celebration of music; it is an urgent call to action that vividly illustrates the intersection of art, compassion, and medical research, ultimately aiming to change lives affected by Epidermolysis Bullosa.
